Yes, we need to talk. And the links I have collected here point to a theme I would like to talk about:
There will be more comments later, for now I’m just quoting the conclusion:
Some people benefit from drugs; some from psychotherapy; some from simple lifestyle changes (including cat ownership); and some from all three. Mental health professionals must work together and learn from one another to give patients timely, appropriate, and honest advice regarding the best options for them.
And inserting a relevant question:
there are certain actual needs I have.
Even when the cliff is not of stone.
I need eyes that see the abyss.
Eyes that see me, where I hang.
I need strong arms that hold a rope.
Even when the arms are not of flesh and bone.
I need a friendly presence
while deathfear cramps itself out.
I need safe silence when I have no words.
When words are there, I might need:
I need a clear brain that reality tests with me:
Was I pushed?
What do others own?
What do I own?
I need someone who gives me time and space
to find what I can learn from my past.
When the time is right.
Someone who knows that it is my abyss.
These are my fingers.
This is my past.
Someone with guts to stay beside me
and does not try to show the way.
Can you give me what I need when I hang over an abyss?
If you can’t, more than anything else,
I need sentences that begin with “I”:
When you say it like that
you own your reactions.
You don’t give them to me.
Rude, you say?
Subjective, you say?
Have a look at this:
Is this polite?
Postscript: Have I been “psychotic”? I don’t know. 24 years ago there were months when I was hallucinating, hearing voices, suicidal and very confused, and I managed to hide these symptoms from my family and the health services.
I had an inner image of hanging on to a teetering “me” when people in my surroundings were trying to push me into a void. And this “me” was validated and strengthened by memories of people I had known and loved as a child, so I was actually hanging on to them, to what it felt like to be with them, what safety and trust and acceptance felt like.
And I knew how my mother acted and what she did before she lost touch with reality, so I knew not to go into her world of polarization, of insisting that everyone else was crazy.
And I finally managed to communicate with my inner critic, who knew that I was wrong, and that the world would be a better place when I was dead. That story is in “Psychiatry or liberation?“, but you need to scroll down a bit. That broke the spell.
I decided a long time ago to flaunt my borderline diagnosis as a banner of autonomy. That liberated me from the shame and humiliation that is a harmful side-effect of borderlining. Rebecca J Lester describes this in Lessons from the borderline: Anthropology, psychiatry, and the risks of being human:
Clinicians generally detest working with borderline patients.1 These clients can present as unpredictable, needy, hostile, overly dramatic, and emotionally draining. As McGlashan (1993: 241) observes: ‘Officially, ‘borderline’ is a diagnostic label. Unofficially, in clinical parlance, it is synonymous with ‘anathema.’’ Gabbard (1997: 26) elaborates: ‘A significant number of professionals within the industry regard borderline patients with contempt.’ And as one psychiatrist told anthropologist Tanya Lurhmann (2000: 113), you look for the ‘meat grinder’ sensation: if you are talking to a patient and it feels like your internal organs are being turned into hamburger meat, she’s probably borderline.
The experiences described by some participants regarding making complaints provide food for thought; the idea that making complaints is typical behaviour for someone with a BPD diagnosis seems to be a powerfully silencing one, positioning the client as someone whose complaints are trivial and/or pathological. The idea of BPD diagnosed clients as prone to making complaints probably also has ties to this client group being seen as difficult and angry, and being responsible for ‘splitting’ staff (Gallop 1985).
In my frame, the symptoms that get labelled Borderline Personality Disorder are symptoms of societal harm, loss, trauma and border violations. The meat grinder sensation is discomfort at getting a glimpse into an invisible war zone that the professional does not want to know about, and the diagnosis of “Borderline Personality Disorder” is generated by a professional Somebody Else’s Problem field and upheld by little homunculi that are jumping up and down in professionals’ heads.
In a strange double bind, psychiatry is clear about there being no need to be ashamed of having been sexually used, hit or gaslighted – and then treats the symptoms of having been used, hit or gaslighted as shameful and contemptible personality defects.
Linking to “Is Anakin Skywalker suffering from borderline personality disorder?” This might seem like a reasonable question to a psychiatrist:
Anakin Skywalker, one of the main characters in the “Star Wars” films, meets the criteria for borderline personality disorder (BPD). This finding is interesting for it may partly explain the commercial success of these movies among adolescents and be useful in educating the general public and medical students about BPD symptoms.
We are three generations of Star Wars fans in my family, and my children and grandchildren have often started discussions about this universe. Looking at how the character’s lives shape their actions and their options has led to useful explorations of free will, ethics, responsibility and values in the world we live in, far, far away from the mental illness frame of psychiatry.
A huge problem with the limited psychiatric illness model is that it gives up on people with “personality disorders”. I’ll be following this program with interest:
“Some psychopaths can be treated”
David Bernstein, Sacha Ruland
From my layperson’s POV, mental help evidence based on P values is information, not TRUTH. And this article explains how and why:
P values have always had critics. In their almost nine decades of existence, they have been likened to mosquitoes (annoying and impossible to swat away), the emperor’s new clothes (fraught with obvious problems that everyone ignores) and the tool of a “sterile intellectual rake” who ravishes science but leaves it with no progeny3. One researcher suggested rechristening the methodology “statistical hypothesis inference testing”3, presumably for the acronym it would yield.
The irony is that when UK statistician Ronald Fisher introduced the P value in the 1920s, he did not mean it to be a definitive test. He intended it simply as an informal way to judge whether evidence was significant in the old-fashioned sense: worthy of a second look. The idea was to run an experiment, then see if the results were consistent with what random chance might produce. Researchers would first set up a ‘null hypothesis’ that they wanted to disprove, such as there being no correlation or no difference between two groups. Next, they would play the devil’s advocate and, assuming that this null hypothesis was in fact true, calculate the chances of getting results at least as extreme as what was actually observed. This probability was the P value. The smaller it was, suggested Fisher, the greater the likelihood that the straw-man null hypothesis was false.
I do realize that professionals have positive associations to the terms “psychological model” and “medical model”.
Two are related to actions:
- Medical mental help
- Non-medical tools and processes.
Two are descriptions of cognitive frames:
- Frame of mental illness
- Frame of trauma and societal harm
Terms like this, however many, could make “choice” a clear and present alternative for people who need help.
Valuing and empowering choice is just as important for psychology as it is for psychiatry.
When it is natural for people to see their symptoms in a frame of mental illness, trying to force them to look at “what happened to you” is an act of unwitting mental violence.
Insisting that depression, psychosis, PTSD, BPD and so on are mental illnesses when people need to see their symptoms in a frame of what has happened and is happening to them is also unwitting mental violence.
As I see it, coerced medication and coerced CBT or DBT are equally harmful, and both types of coercion are frighteningly common in so-called “mental health care”.
And I do realize how difficult, maybe even impossible, it can be for people in the mental help professions to assimilate information that they may be harming more people than they help.
But there comes a time when information of harm is so ubiquitous and easily accessible that the word “unwitting” loses its relevance. And maybe that time is now?
YOU CAN’T MAKE ME FLY
You research makeflying with genuine user engagement.
But have you thought about what you do when you makefly?
You staple onto people mass produced wings, onesizefitsall, with a willpowerdriven rubber band engine. Strong enough to flutter them out of your sight.
Some are OK with that, and that’s OK.
Others lie broken on the ground some distance away – do you see them? Do you hear them, when they say that the wings did not fit? That the rubber band broke?
When you evidencebasedresearch makeflying, what do you look for? Do you only see what you do, what other makeflyers do? Do you only hear the people who were helped?
Do you seek out everyone you madefly, and do you listen, with your mind and your guts, to what they have to say? Setting aside your rating scales and check boxes for later?
Do you seek out the ones who were helped, after six months, one year, two years, ten years, to check the elasticity of their willpower rubber band?
YOU CAN’T MAKE ME FLY
You can’t make me anything, and from me you do not get user engagement. I don’t use. I don’t engage. I steer. I have chosen to live as an autonomous entity.
YOU CAN’T MAKE ME FLY
I have no need for makeflying. I need to fly. Can you give me what I need?
I need help from people who can fly, fly with their own wings, wings that they were born with. People who can show me that it is possible, people who know how it is done.
If you make evidencebased, mass produced, willpowerdriven onesizewings, I need you to get out of my way. Do not dismiss my wings because they are not evidencebased, do not clip my wings because you know that they are abnormal, do not set snares to prove that my wings do not work. And above all … do not expect user engagement.
YOU CAN SUPPORT MY TRUST IN THE WINGS I WAS BORN WITH
I need to trust my ability to fly, I need to trust my wings, I need to know that I am able to own my life and steer it myself.
I need people to be with me in finding out what harmed my wings, be with me in finding out what I can do to fix them, and I need to own the repair work, also when I cannot do it alone.
I need room to test my wings, I need to let them grow in a safe and peaceful place. I need pride, admiration and acknowledgement when I flap my wings, test them.
I NEED AIR UNDER MY WINGS
And most of all I need you to show
that you know
that air is not something you can give me.
Air just is.
I’ve been asking myself “what is science”? “How can I separate real science from misleading evidence-based research? This 40-year old essay by Richard Feynman has some good pointers.
He describes certain educational and psychological studies as cargo cult science. And asks: “Do they work?”
He describes certain educational and psychological studies as cargo cult science. And asks: “Do they work?”
Cargo Cult Science
So I found things that even more people believe, such as that we have some knowledge of how to educate. There are big schools of reading methods and mathematics methods, and so forth, but if you notice, you’ll see the reading scores keep going down–or hardly going up–in spite of the fact that we continually use these same people to improve the methods. There’s a witch doctor remedy that doesn’t work. It ought to be looked into; how do they know that their method should work? Another example is how to treat criminals. We obviously have made no progress–lots of theory, but no progress–in decreasing the amount of crime by the method that we use to handle criminals.
Yet these things are said to be scientific. We study them. And I think ordinary people with commonsense ideas are intimidated by this pseudoscience. A teacher who has some good idea of how to teach her children to read is forced by the school system to do it some other way–or is even fooled by the school system into thinking that her method is not necessarily a good one. Or a parent of bad boys, after disciplining them in one way or another, feels guilty for the rest of her life because she didn’t do “the right thing,” according to the experts.
So we really ought to look into theories that don’t work, and science that isn’t science.
I think the educational and psychological studies I mentioned are examples of what I would like to call cargo cult science.
Integrity! Yes! And honesty! And leaning over backwards! That is certainly convincing:
There is one feature I notice that is generally missing in cargo cult science. … It’s a kind of scientific integrity, a principle of scientific thought that corresponds to a kind of utter honesty — a kind of leaning over backwards. For example, if you’re doing an experiment, you should report everything that you think might make it invalid — not only what you think is right about it; other causes that could possibly explain your results; and things you thought of that you’ve eliminated by some other experiment, and how they worked — to make sure the other fellow can tell they have been eliminated.
Details that could throw doubt on your interpretation must be given, if you know them. You must do the best you can — if you know anything at all wrong, or possibly wrong — to explain it. If you make a theory, for example, and advertise it, or put it out, then you must also put down all the facts that disagree with it, as well as those that agree with it. There is also a more subtle problem. When you have put a lot of ideas together to make an elaborate theory, you want to make sure, when explaining what it fits, that those things it fits are not just the things that gave you the idea for the theory; but that the finished theory makes something else come out right, in addition.
In summary, the idea is to try to give all of the information to help others to judge the value of your contribution; not just the information that leads to judgement in one particular direction or another.
Scientists who show that they do not fool themselves, and do not to fool the layperson are convincing:
But this long history of learning how to not fool ourselves–of having utter scientific integrity–is, I’m sorry to say, something that we haven’t specifically included in any particular course that I know of. We just hope you’ve caught on by osmosis.
The first principle is that you must not fool yourself–and you are the easiest person to fool. So you have to be very careful about that. After you’ve not fooled yourself, it’s easy not to fool other scientists. You just have to be honest in a conventional way after that.
I would like to add something that’s not essential to the science, but something I kind of believe, which is that you should not fool the layman when you’re talking as a scientist. (…) I’m talking about a specific, extra type of integrity that is not lying, but bending over backwards to show how you’re maybe wrong, that you ought to have when acting as a scientist. And this is our responsibility as scientists, certainly to other scientists, and I think to laymen.
Feynman also writes about the importance of putting sand in lab rat cages … I’ll let you find that in the link. And he ends with a wish that I send out to all researchers:
So I have just one wish for you–the good luck to be somewhere where you are free to maintain the kind of integrity I have described, and where you do not feel forced by a need to maintain your position in the organization, or financial support, or so on, to lose your integrity. May you have that freedom.
Here are some of the links:
- “Duke University would have avoided embarrassment, a misconduct investigation and a lawsuit, had its top administrators paid closer attention to a thoughtful report by a medical student who saw problems in the lab of the disgraced scientist Anil Potti,” The Cancer Letter reports.
- An Epistemology of Scientific Crackpottery: “He violated the 1st commandment of science: When nature speaks, listen.”
- Journals must do more to stop authors from using “tricks of the trade” to increase their chances of being published, urge two researchers at Lund University.
- “[T]he review and editing of scholarly papers is a critical element of academics’ work and should be recognized as such by their institutions and funding bodies,” argue a number of journal editors in Australia, Alice Meadows writes.
- Romanian scientists are angry that prime minister Victor Ponta — who renounced his PhD in December following charges of plagiarism — issued an “emergency” governmental decree that “allows people to relinquish their doctoral degrees through the ministry of education, without an explanation,”Nature reports.
- “Telling The Story Behind The Retraction:” A Q&A Ivan did with Wiley in which he describes his favorite Retraction Watch merchandise.
- “Researchers are working to automate the arduous task of identifying—and amending—mislabeled sequences in genetic databases,” The Scientist reports.
- A day in the life of an academic, as portrayed by cats.
- “Elsevier Launches Open Access Journal That Will Publish Sound Research Across All Disciplines.”
- Pulse International (Pakistan) has a report from the Second International Conference on Publication Ethics in Shiraz, Iran.
- The one chart you need to understand any health study, from Vox.
- Robin Bisson describes the Genetic Expert News Services (GENes), which “aims to help reporters cover genetics.”
- In other news that could help journalists do a better job, Health News Review is back after a hiatus, thanks to funding from the Laura and John Arnold Foundation.
- “One of Science’s Most Famous Quotes Is False,” says Michael Specter, with an alley-oop from Carl Zimmer.
- “[I]f much-honored faculty are copying without attribution, it’s harder to motivate instructors at these universities to insist that their hard-pressed students write everything in their own words,” writes Andrew Gelman.